About Me

Wife, Physical Therapist turned stay-at-home SMA mom, and Independent Wellness Advocate for essential oils. I'm Meredith and this is the journey of our beautiful life! I am Mom to our sweet Leo, who was diagnosed with Spinal Muscular Atrophy (SMA) at 3 wks of age. SMA is a terminal, neuromuscular genetic disease. Our life is not what we "planned", and it can certainly bring many tears at times, but Leo shines a light brighter than we could have ever imagined. His love and joy has changed our lives, and we are forever grateful for our greatest blessing. He is medically fragile and requires 24/7 skilled care, but to us he is perfection. He is part of a greater plan we are just beginning to get a glimpse of. We live life embracing every moment, and doing everything we can to give Leo every experience possible all while praising God for our MANY blessings.

Sunday, June 28, 2015

Father's Day weekend


Thank you so much for all your prayers for Leo! We are happy to report he is doing well. He has had us worried here recently with a high heart rate and lower oxygen than his norm. He was obviously not feeling well, and he was working much harder to breathe, especially in the mornings. We pulled out a giant mucous plug and he has been feeling much better ever since. We had a great Father’s Day weekend last weekend full of celebrations, fishing and spending time with family. We did some very “normal” things this past week. Leo went to get an oil change in his van, went shopping and had several trips to the park! We had another great weekend together. We enjoyed some cooler weather today at the lake and watching some “chicken TV”! We also had a first trip on part of the Palmetto Trail across the river!









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