Spinal muscular atrophy is a horrible disease. It has stolen Leo's ability to sit up, walk, eat and even breathe on his own. It controls so many aspects of our lives with treatments, equipment and physical limitations. But it does not control our happiness. We are not getting by or just managing. We are living life, and we love it. I am so different from most mothers in so many ways. But our love for our children connects all of us. The hardest part of being a mother for me is no different than you. It is when our babies hurt and we can't fix it. I am so grateful for every single moment we have with Leo. But most importantly, I am grateful that he is comfortable, happy and that he loves his life. Happy Mother's Day to all of the moms, moms to be, angel moms and moms at heart.
Here is another attempt of me piecing together some video clips of Leo. We are so grateful he taught us how to live, and I am so very proud to his mom.
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