About Me

Wife, Physical Therapist turned stay-at-home SMA mom, and Independent Wellness Advocate for essential oils. I'm Meredith and this is the journey of our beautiful life! I am Mom to our sweet Leo, who was diagnosed with Spinal Muscular Atrophy (SMA) at 3 wks of age. SMA is a terminal, neuromuscular genetic disease. Our life is not what we "planned", and it can certainly bring many tears at times, but Leo shines a light brighter than we could have ever imagined. His love and joy has changed our lives, and we are forever grateful for our greatest blessing. He is medically fragile and requires 24/7 skilled care, but to us he is perfection. He is part of a greater plan we are just beginning to get a glimpse of. We live life embracing every moment, and doing everything we can to give Leo every experience possible all while praising God for our MANY blessings.

Tuesday, May 5, 2015

Disney



Leo has been on the go again! He just returned home from going to Disney World!!! It was an amazing trip. He had a great time, and got to spend time with his cousins, aunts, uncles and grandparents. We are (of course) so proud of how well he did!
He was able to do so much in Disney! He went to Magic Kingdom, Animal Kingdom, Hollywood Studios and Epcot. He was actually able to ride several rides! Certain rides have special wheelchair accessible carts where he is able to be in his medical stroller. We had a feeling he would enjoy the rides, but had no idea how much he would LOVE them!! A few he could ride were Toy Story, Journey of the Little Mermaid, It's a Small World and Nemo and Friends. 


He saw several shows including Lion King. He was also able to ride in a wheelchair accessible jeep to go on the Safari in Animal Kingdom! He went to Downtown Disney and loved hearing live music, saw a fireworks show at Epcot and saw the Electrical lights parade at Magic Kingdom. He even met Mickey Mouse, and the cast of the Lion King show! He stayed in “Radiator Springs” in a Cars themed hotel that was so much fun. It was an amazing experience. There was so much for him to see. He is limited by his disease in so many ways, but at Disney it felt like he was involved in everything. The light in his eyes brought us so much joy.
Every Cast Member we came in contact with was very understanding and completely accommodating. We could not have imagined things would go as smoothly as they did. We could never say enough great things about this trip and what this trip meant to our family. We are so blessed and so thankful to have had this time.


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