About Me

Wife, Physical Therapist turned stay-at-home SMA mom, and Independent Wellness Advocate for essential oils. I'm Meredith and this is the journey of our beautiful life! I am Mom to our sweet Leo, who was diagnosed with Spinal Muscular Atrophy (SMA) at 3 wks of age. SMA is a terminal, neuromuscular genetic disease. Our life is not what we "planned", and it can certainly bring many tears at times, but Leo shines a light brighter than we could have ever imagined. His love and joy has changed our lives, and we are forever grateful for our greatest blessing. He is medically fragile and requires 24/7 skilled care, but to us he is perfection. He is part of a greater plan we are just beginning to get a glimpse of. We live life embracing every moment, and doing everything we can to give Leo every experience possible all while praising God for our MANY blessings.

Wednesday, May 27, 2015

Lake and Chickens





Our little man has been doing great! He has had to be on several rounds of antibiotics for more bugs, but he has been doing wonderfully here recently. We pray that this round has taken care of this issue. Unfortunately what he has been fighting is common in kiddos with SMA.
Leo’s chickens arrived, and we are having so much fun watching them! We are still working on Wyatt’s relationship with them. This could take a while!
Leo has been doing great with using his Tobii EyeGaze device. He consistently tells us when he needs a suction, and he loves to talk about his pets (especially Wyatt) family, and things he likes to do. One thing he has done since he first started using the device is as soon as the computer loads and he is set up he will put a song on for some background music while he chats, explores and plays games. He will also often say “Mine” and “Don’t touch” if we try to change something on the screen.
He has had some great days floating in the pool, going for a boat ride and spending time with family. He also went to the movie theater for the first time! He was very impressed.
Thank you so much for all of your continued love and prayers. Please pray that Leo could remain illness free when he comes off of his antibiotic and that he continues to enjoy his summer.

Leo loves to pray at night and becomes very vocal as we build up to Amen!

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