About Me

Wife, Physical Therapist turned stay-at-home SMA mom, and Independent Wellness Advocate for essential oils. I'm Meredith and this is the journey of our beautiful life! I am Mom to our sweet Leo, who was diagnosed with Spinal Muscular Atrophy (SMA) at 3 wks of age. SMA is a terminal, neuromuscular genetic disease. Our life is not what we "planned", and it can certainly bring many tears at times, but Leo shines a light brighter than we could have ever imagined. His love and joy has changed our lives, and we are forever grateful for our greatest blessing. He is medically fragile and requires 24/7 skilled care, but to us he is perfection. He is part of a greater plan we are just beginning to get a glimpse of. We live life embracing every moment, and doing everything we can to give Leo every experience possible all while praising God for our MANY blessings.

Thursday, September 10, 2015

Go Leo Go Registration!

Leo is very excited to announce that registration for the 2015 Go Leo Go is now officially open!! It is October 31 at his favorite park, Saluda Shoals in Irmo, South Carolina. The 5k will begin at 8:30 am and will be followed by the 1 mile family walk and Lionheart Dash! We are so excited that this event will be for everyone! Whether you are a competitive runner, this is your first 5k or 1 mile walk, or you are a special and exceptional athlete, this will be an event for you! Last years winner came in just over 16 minutes, many ran their first 5k and more walked and rolled in the 1 mile! Wagons, strollers, wheelchairs, walkers ect. are welcome and encouraged!
Following the events we will have awards, and we will be celebrating Leo turning TWO years old! This is a huge milestone for our special boy and we are so very proud of him. Awards this year will also include a costume contest, so start thinking about your costume! We will have also have games and activities following!
When you register you will be able to select from three options 1) 5k runner 2) Walk or 3) the Lionheart Dash which is for exceptional and special athletes.
The website also has links for sponsorship, volunteer opportunities, and the option to make a donation if you are not able to participate. (All donations will be qualify as a tax write off)
The event will help raise awareness for SMA, fund research to find a Cure for SMA, support the medical equipment pool through cureSMA.org and fund the LEO grant.
We look forward to bringing everyone together in celebration of our unique abilities!!

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