Thank you so much for all of your kind comments, likes and shares of Leo’s interview! Even if we did not get to respond to every one, we read them all and they meant so much to us!
I was so very proud of how great Leo did. We were sad Adam couldn’t be there with us, but maybe next time! Being a parent to a child with SMA has many challenges, some are the same of any parent and others are unique to our situation. Being an SMA Dad is like no other. Adam is often, as described to me the other day, “the rock behind the scenes”.
He is the one that has had to leave Leo when he was not doing well. He is the one that has to be gone everyday to support our family and provide Leo with insurance. He can’t make all of Leo’s appointments, but wishes he could be there to hear all the details. He is sometimes left out of decisions regarding Leo, not because we don’t communicate, but because there simply isn’t enough time in the day to discuss everything that needs to be decided. He is the one that has to listen to me complain about my 90th call to insurance I had to make that day.
He is the one that has had sit through a phone call listening as I worked on Leo to get his oxygen and heart rate up. Called because it was taking so long, and if I couldn’t, if something happened, I wanted and needed him there.
When you are with Leo it is impossible to feel anything other than love, hope and joy. Busy yes, anticipating and prepared for scary scenarios, yes, but negative thoughts don’t stand a chance when you are with our sweet boy. I am so very blessed that I get to be with him all the time. The hard part is when you are away from him. We are so blessed to have our “rock” with a strength and faith that others might never see.
And Leo sure does love his Daddy!!
No comments:
Post a Comment