We had an amazing day today with friends and family. Leo has become quite the lake lover, and he had a great time going on a boat ride and hanging out on the dock!
This evening we lit our candle in honor of SMA angels and warriors. There are many times we push aside the reality of what a diagnosis of SMA can mean. We choose not to think about this, and celebrate and live in the moment. Tonight we celebrate our warrior Leo, but also celebrate the lives of all the many other warriors and angels. Our hearts ache for the families that are going through such incredibly tough times after the loss of their child, tough times that we can only imagine do not end. We send our love to all of you.
We are so very blessed to have Leo. SMA is horrible, but Leo is as put today "an angel on earth". Leo and so many of these children have touched so many lives, and are changing the world. We are also reminded once again, how very blessed we are to be surrounded by love and support for us and Leo. Friends and family have reached out in so many ways along our journey. You all will never know what this means to us. Thank you so much.
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